Impact Report
June 2025 – May 2026
Thank you!
Dear Supporters,
Some days are incredibly daunting and disappointing. Other days, when we look back on all we’ve accomplished together over the past twelve months, we’re reminded exactly why Neuroimmune Foundation was founded in the first place and what a privilege it is to walk alongside so many of you on this journey.
Because of the generosity of our community, we’ve made a meaningful difference together this year. None of this important work would be possible without the incredible individuals who support our mission, and I want to extend my heartfelt thanks to each and every one of you.
Thank you for believing in this work, for standing together with us, and for helping us bring all of our families that much closer to the light at the end of the tunnel.
With Gratitude,
Anna Conkey
Executive Director and Founder
Neuroimmune Foundation
July 2026
Contents
Neuroimmune Foundation Impact Report 2026
Click on the image to view the PDF of the Neuroimmune Foundation Impact Report 2026 as a flip book.
© 2026 Neuroimmune Foundation. All rights reserved.
All content, including selection, arrangement, and presentation of information is protected.
Survey 2026
Survey Data
To ensure that our accredited continuing medical education (CME) is having the intended impact, we follow up regularly with clinicians who have attended our CME events or accessed our resources in order to find out the impact our programs had on their medical practices, and ultimately their patients. The data shows clinicians find these programs critically important to their confidence diagnosing PANS and PANDAS and extremely valuable. It’s particularly exciting to see clinicians report year after year that our work is changing their perception of PANS/PANDAS.
Percentages rounded to the nearest whole number
Has Neuroimmune Foundation’s ECHO® program, Inflammatory Brain Disorders Conference, On-Demand CME, and other educational resources helped you feel more competent in diagnosing and treating PANS/PANDAS?

Did you find Neuroimmune Foundation’s tools, materials, CME programs, and ECHO® meetings useful for diagnosing and treating patients?

Was your perception of PANS/PANDAS changed as a result of the Inflammatory Brain Disorders Conference, On-Demand CME, and/or ECHO® meetings?

How important is ongoing CME on inflammatory brain conditions, including PANS/PANDAS, in helping you feel confident diagnosing and treating these conditions?

As a result of the Inflammatory Brain Disorders Conference, ECHO® meetings, and/or On-Demand CME, did you reconsider—or consider for the first time—that a patient might have an inflammatory brain condition, including PANS/PANDAS?

How valuable are Neuroimmune Foundation’s programs in enhancing your confidence in diagnosing and treating PANS and related neuroimmune conditions?

Financials 2025/2026
Financial stewardship, integrity, and accountability
Financial stewardship, integrity, and accountability are among Neuroimmune Foundation’s core values. Careful strategy to maximize impact is at the heart of everything we do.
Two of the nation’s leading charity evaluators have recognized Neuroimmune Foundation’s excellence in financial stewardship, organizational accountability, and organizational effectiveness with their highest possible ratings. Neuroimmune Foundation earned Charity Navigator’s perfect 100% rating for the second consecutive year, placing it among fewer than 1% of charities evaluated by the nation’s largest independent charity evaluator. Neuroimmune Foundation is the only PANS/PANDAS nonprofit organization to have ever achieved Charity Navigator’s highest possible rating which recognizes our exceptional effectiveness.
We have also received Candid’s Platinum Seal of Transparency for the eighth consecutive year, an honor held by fewer than 1% of nonprofit organizations. Neuroimmune Foundation is also the only PANS/PANDAS organization to have held this distinction for eight consecutive years.
We are proud that these rankings provide independent validation of the standards to which we hold ourselves and our organization.




Allocation of Donor Contributions and Grants in 2025
Total Contributions & Grants Received: $ 198,766


All patient and family support services, as well as administrative and operational expenses, were funded through separate income sources or provided by volunteers, allowing 100% of donor contributions and grants to directly support physician education, outreach, and research initiatives.
The value of your donation
We are committed to maximizing the impact of every donor dollar. We believe the highest impact investment we can make is educating clinicians so that they can properly care for our families. This year, donor support helped fund free CME through Neuroimmune Project ECHO® programming, expert consultation panels, educational outreach to hundreds of residency and fellowship programs, educational outreach to hundreds of thousands of clinicians, and the continued expansion of the world’s largest PANS/PANDAS clinician education network.
Every clinician reached has the potential to improve care not just for one patient, but for hundreds over the course of their career. The impact of that investment is reflected in the physician testimonials, patient outcomes, and survey responses featured throughout this report.
News & Milestones
PTEC© – A Game Changer
The Neuroimmune Foundation developed and published the
PANS/PANDAS/ Related Inflammatory Brain Disorders Treatment and Flare Evaluation Checklist – PTEC©
the most comprehensive symptom-tracking tool available for PANS/PANDAS
The PTEC© was designed to help families and clinicians objectively track symptoms, flares, remissions, and treatment responses over time, providing a clearer picture of disease progression and helping inform clinical decision-making and care planning.
To ensure the tool was both scientifically rigorous and clinically meaningful, Neuroimmune Foundation conducted a validation study involving 225 families and subsequently published the results in a peer-reviewed journal. Today, the PTEC© is used by hundreds of clinicians and families and includes 101 evidence-based measures covering the broad range of symptoms commonly seen in PANS/PANDAS and related neuroinflammatory conditions.
Available free of charge through Neuroimmune Foundation, the PTEC© gives families and clinicians a practical, evidence-based way to monitor symptoms, evaluate treatment responses, and contribute to future research efforts.
Open Evidence, an AI tool used by more than 2/3 of U.S. physicians that synthesizes answers from millions of peer-reviewed biomedical publications, including The New England Journal of Medicine (NEJM), JAMA and the JAMA Network, Cochrane Reviews, and other journals, listed the PTEC© as the “the most comprehensive tool available” for tracking PANS/PANDAS symptoms and noted that it “demonstrated excellent internal reliability (Cronbach’s α = 0.96),” among the highest reported for available symptom-tracking tools.
Please find the PTEC© and all details at: neuroimmune.org/ptec
Direct link to the publication: mdpi.com/2036-7503/17/4/81
What clinicians and families say about PTEC©:
THANK YOU for developing the PTEC. It’s so useful for me to learn from parents what they’re seeing and then show parents where improvement is coming from when sometimes it’s hard for them to see it on the inside of their often chaotic, stressful worlds.
I’ve attached, no PHI, a side-by-side of 6 weeks between PTECs. Left is late October, and right is yesterday… and when I shared this with parents, they were amazed to see how things changed. Yes, the vibes were “better” but not the like 80% decrease in symptoms that we see when doing an actual objective measure. Thanks!
Phil Boucher, MD
Pediatrician, Nebraska
I LOVE the PTEC. It brings so much clarity to something that was so hard to figure out as a parent. I spent SO much time trying to research what it really meant to have PANS before the PTEC was released. It was really confusing to me, and some of the words in the typical symptom list were too medical for a layperson to understand. I feel like breaking down what OCD even means is so helpful. And ‘emotional lability.’ The checklist provides tangible concepts/symptoms and accessible language. I even had a hard time with the language before the PTEC, and I have a science background with a masters in genetics and work in academia. The PTEC is SO helpful, and I think it is likely helping kids get diagnosed that otherwise would not have.
Grace Troupe
Parent
New Publication!
In August 2025, Neuroimmune Foundation published its second Special Issue of Developmental Neuroscience focused on inflammatory brain disorders, including PANS/PANDAS. The issue brought together leading international experts to highlight advances in research, diagnosis, and treatment.
Medical practice is shaped by the scientific literature. Physicians are trained to follow evidence, and peer-reviewed publications play a central role in determining which conditions are recognized, studied, taught, and treated. By helping expand the body of high-quality published research on PANS/PANDAS, Neuroimmune Foundation is working to move these conditions further into mainstream medical practice and improve access to appropriate care for patients and families worldwide.
An Ongoing Success Story

Neuroimmune Expert Consultation Panel
An ongoing opportunity for physicians to consult face-to-face virtually
with leading experts in the field of neuroimmunology
Neuroimmune Expert Consultation Panel
An ongoing opportunity for physicians to consult face-to-face virtually with leading experts in the field of neuroimmunology
The Neuroimmune Foundation’s Expert Consultation Panel was established in 2022 to help clinicians think through cases in a multi-disciplinary team setting. Across dozens of cases, clinicians learned from each other, shared their knowledge, and had a hugely positive impact on PANS/PANDAS and neuroimmune patients, many of whom were fully restored to good health.
All information at
www.neuroimmune.org/ panel-consultation

Feedback on the Expert Panel


2025 / 2026
A Review of the Past Year:
The Impact of Our Programs
Because of your support, clinicians around the world are better equipped to diagnose and treat complex neuroimmune conditions, leading to faster care, improved outcomes, and meaningful relief for patients and families facing PANS/PANDAS. With your support, this is what we accomplished the past year.





Support our work – with confidence!
Candid (formerly Guidestar), the world’s largest source of information on nonprofit organizations has granted Neuroimmune Foundation their Platinum Seal of Approval the past eight years in a row (2019–2026), an honor held by only 0.5% of nonprofits.
Neuroimmune Foundation is the only PANS-focused nonprofit to receive Charity Navigator‘s highest rating, 4/4 stars with a 100% rating.


CME, Expert Panel, lectures, ECHO®, and PTEC©
Comments from Clinicians
Neuroimmune Foundation’s Project ECHO collaboration has given me the tools to treat patients with PANS/PANDAS on the front lines. It has been indispensable in my continued education; without it I would not feel equipped to treat these complex patients. With the help of this program, I have treated over 75 cases, with an emphasis on expanding access to care in low-resource areas. I am so grateful for the team’s commitment to excellence, access, and education.
Rachel Roth, MD
Haifa, Israel
Neuroimmune Echo is the best continuing education experience I have ever participated in. I love the presentations, the clinical case discussions and clinical implications in my practice. This experience has greatly increased my understanding in recognizing and treating illnesses associated with the neuroimmune response of our bodies. The expert panel is fabulous, and over the 10 session courses thus far, they become like your own clinical team. The experts are competent, gracious and effective in their communication and education. I want to thank you for the opportunity to participate in this incredible experience. I also extend a shout out to my colleagues who provided the clinical cases for discussion.
John Lesica, MD
Child and Adolescent Psychiatry, North Carolina
I completed the Neuroimmune ECHO, which was an extremely positive and beneficial experience. The course leaders included internationally recognized specialists from many fields. The didactic presentations were clear and informative. Case presentations illustrated the complexities of many of these disorders. We learned from the multi-disciplinary perspectives and recommendations. I highly recommend this course and look forward to continuing to participate.
Jay E. Selman, MD, MS
Professor of Neurology and Pediatrics, Columbia, New York
Very helpful to share best practices and understand how others are approaching complex clinical cases nationwide.
Matthew Baum, MD, PhD, DPhil
Psychiatry, Brigham and Women’s Hospital, Harvard Medical School, Massachusetts
The quality of the education provided by the Neuroimmune Foundation is unparalleled. Their on-demand CME, dozens of expert panel case discussions, lectures, ECHO, and PTEC have allowed me to confidently diagnose and treat children with neuroinflammatory conditions, such as PANS/PANDAS.
Natalie Bruce, MD
Pediatrician, North Carolina
The ECHO series was invaluable for both its content and its collegiality. Many practitioners are working solo in systems of care that do not recognize or endorse the evaluation and management of children with neuroimmune disorders (PANS/PANDAS and others), making the support of this work extremely important. The Neuroimmune Foundation has created a fabulous solution to one of the most challenging aspects of this field: access to expertise. The format of didactic presentations on important aspects combined with a case presentation from a participant with discussion by the experts and questions from other participants was invaluable.
The information will ‘echo’ far and wide!
Richard P. Morse, MD
Professor of Neurology, Dartmouth Geisel School of Medicine, New Hampshire
Having a consistent opportunity to review the latest research with experts was invaluable. But even better, from a clinical perspective, was the opportunity to review and discuss real-world cases and review clinical options to support patients. Many in the group who presented cases faced challenges with colleagues and within medical systems in terms of implementation of diagnostic work-ups or clinical care. There is so much more work to be done to educate our medical colleagues and get patients the care they need.
Sylvia Fogel, MD
Instructor, Harvard Medical School
The Neuroimmune Foundation’s ECHO Project was an exceptional resource for frontline clinicians, offering continuous learning opportunities. The discussions were insightful, evidence-based, and focused on the realities of addressing the complexities of these immune-mediated disorders. The video conferences offered a rare blend of academic depth and practical wisdom, fostering a meaningful professional dialogue. The ECHO Project was an invaluable platform for clinicians dedicated to helping practicing clinicians deliver the highest standard of patient care when confronted by these challenging disorders.
Professor Thomas Heinrich, MD
Professor and Vice Chair in Psychiatry and Behavioral Medicine, Medical College of Wisconsin
The Neuroimmune ECHO Cohort has been one of the most enriching professional learning experiences of my career. The weekly sessions offered an unparalleled opportunity to engage directly with leading experts in neuroimmunology, psychiatry, and related disciplines. The integration of clinical cases with cutting-edge science and research has directly enhanced my ability to evaluate and treat complex neuroimmune presentations in both children and adults. This program is an invaluable resource for any clinician committed to advancing the care of patients with complex neuropsychiatric conditions. The access to expert knowledge, current research, and collegial discussion has been transformative for my practice and my patients.
Kathy Gallardo, MD, PhD
Alaska
I found Neuroimmune’s ECHO program to be extremely valuable. As a psychiatrist, I care for a number of patients with autoimmune encephalitis and other autoimmune neuropsychiatric conditions, and my confidence in recognizing these disorders and pursuing appropriate diagnostic and treatment next steps has increased significantly through this program. I am very grateful for the opportunity to participate, and I am confident that this experience will lead to better outcomes for my patients.
Sahil Munjal, MD, FAPA, FACLP
Psychiatry Residency Director, Associate Professor, Wake Forest University School of Medicine
As a translational physician-scientist moving back toward provision of clinical care after a number of years, this Neuroimmune Foundation program provided an exceptionally rich, scientifically grounded, yet clinically-relevant learning experience focused on consideration of cases with high suspicion of immune and/or infectious involvement. The didactic and case presentations and the ensuing discussions were phenomenal. I am grateful both to the Foundation for creating this opportunity, to the program leads, as well to my fellow brilliant and inquisitive physicians participating in Cohort One.
Mady Hornig, MA, MD
Visiting Scientist & Professor, The Feinstein Institutes for Medical Research, Northwell Health, Manhasset, NY; Visiting Scientist, MIT, Cambridge, MA
Participation in the Neuroimmune Foundation’s ECHO Project has been an exceptional professional experience. The evidence-based content and case-based discussions provided practical, clinically applicable insights in a field where reliable knowledge is still limited and often difficult to access. Learning directly from leading international experts offered a rare opportunity to deepen understanding in this rapidly evolving area of medicine.
Agnieszka Wroczynska, MD, PhD
Internal Medicine Consultant, Poland
The Neuroimmune ECHO offered by the Neuroimmune Foundation over the six months of have been a truly fascinating medical chapter and, from a human perspective, a deeply moving one. Too often, we were not able to be there alongside the children who presented with psychiatric symptoms rooted in neuroimmunological disorders. Many still do not yet believe in PANS/PANDAS, and those physicians who do understand it often end up feeling isolated. Yet I am convinced that this is only a temporary stage in Romania. I firmly believe that dedicated doctors, once they see both our learning journey and our clinical experience, will choose to join our team – those of us who want to shift the paradigm and who are privileged to learn from the very best in the world. Thank you, Neuroimmune Foundation –
what an extraordinary gift and privilege it has been to be part of everything you have offered with such generosity and kindness!
Dr. George-Bogdan Cotică
Pediatric Psychiatrist, Romania
One of the most meaningful parts of the ECHO experience has been how it challenged me to step outside of my usual clinical comfort zone. It prompted me to think more openly about how disease processes and perspectives from other disciplines intersect with the neuropsychiatric patients I treat every day. That broader lens has made me more intentional about taking a truly holistic approach, seeing each patient not just through one specialty framework, but as a whole person shaped by overlapping neurologic, psychiatric, medical, and social factors.
Min Soo Lee, MD
Psychiatrist, North Carolina
The Neuroimmune Foundation ECHO program has been incredibly informative and valuable for me as a pediatric dysautonomia provider. Working with children, adolescents, and young adults with autonomic disorders is extremely challenging, especially when there are neuropsychiatric symptoms. I have learned a lot these past two months in the ECHO program and will use this knowledge to better care for my patients as well as educate my team on co-morbid neuroimmune disorders in patients with dysautonomia.
Liz Bettini, PhD, APRN, PCNS-BC
Assistant Professor of Nursing and Pediatrics, George Washington University; Children’s National Hospital, Washington, DC
The ECHO program was an amazing experience that significantly enhanced my diagnostic thinking and broadened my knowledge of rare neuroimmunological and neuropsychiatric conditions such as PANS and PANDAS. The discussions with expert consultants from around the world offered invaluable perspectives and practical insights. I would be delighted to join again and highly recommend this course to all clinicians interested in advancing their understanding in this field.
Dr. Ahmed Kaki
Pediatric Neurologist, Saudi Arabia
Paediatric neuroimmune conditions are an underrecognized public health problem impacting on children’s and family’s lives worldwide. A significant barrier to addressing this public health problem relates to health systems and medical education – the majority of clinicians simply don’t recognise these illnesses when they encounter them in clinical practice. As a consequence patients typically languish untreated – with significant morbidity often for years. The ECHO program provided a scientifically informed program that addressed this clinical knowledge gap for a global cohort of clinicians. As such it represents an important public health intervention.
Danielle Esler MBBS (Hons) B Med Sci (Hons) MPH FRAGP FAPHM
Public Health Physician and General Practitioner, Australia
I am a child and adolescent psychiatrist and this ECHO was incredibly high yield value for time to learn an approach to complex neuroimmune conditions. The information provided in the didactic lectures was well presented. The ECHO team possessed a wealth of expertise and facilitated case based learning allowing real world application of concepts taught in a safe and collegial learning environment.
Jennifer Nguyen, MD
Canada
I found the ECHO series extremely educational. The lectures and case presentation allowed the cohort to advocate for some of our sickest patients. As important was the fact that cutting edge researchers and clinicians helped community physicians in a complicated area of medicine that impacts so many patients, yet so many other physicians are not aware of at this time. I would highly recommend this program to any physician with an interest in this area of medicine.
Dr. Jeff Hopkins
Atlanta
One of the best learning experiences for me in 2025! Faculty is extremely knowledgeable and provide world class presentations and learning opportunities. Case presentations are illustrative and encourage application of recently learned information. I plan on attending this year as well.
Edward M. Gentile, DO, MBA, DLFAPA
Behavioral Health Medical Director, Optum-ECS
I found the Neuroimmune Foundation’s ECHO program incredibly impactful. The combination of concise, evidence-based teaching and real-world case discussions provided a wealth of practical knowledge that directly improved my ability to care for patients with complex neuroimmune and neuropsychiatric conditions. The sessions were intellectually engaging, supportive, and deeply relevant to everyday clinical challenges. This program has truly transformed how I approach diagnosis and management, and I would highly recommend it to any clinician seeking to better understand and support patients with immune-mediated neuropsychiatric disorders.
Nina Gudeon, MD, FRCPC
Calgary, Alberta, Canada
Participating in Neuroimmune Foundation’s ECHO program has been an invaluable experience for my clinical practice. In Japan, awareness of PANS/PANDAS remains very limited, despite many children struggling with these conditions. Learning from international experts, engaging in live case discussions with a global clinical community, and accessing practical educational resources have greatly strengthened my ability to recognize and treat neuroimmune conditions. I hope to help expand this knowledge in Japan and across Asia.
Ryoko Homma, MD
Kawasaki, Kanagawa, Japan
Participating in Neuroimmune Foundation’s ECHO cohort had an invaluable impact on me. Working in a country where PANS is barely heard of by the medical community, both the information shared by world-class professionals both the experience of being part of a community of colleagues working with this disease was very important for me. Can’t thank you all enough for making it possible.
Eszter Bukovszky, MD
Neurologist, Hungary
The Neuroimmune Foundation’s ECHO program is a powerful force multiplier for clinical competency. It refined my existing approach to complex pediatric neuropsychiatric cases and provided new strategies for managing neuroinflammatory presentations. This is a must for clinicians in this field— I highly recommend it.
Erwin Kay, MD
Singapore