Start a local chapter!

Our chapters serve as a local touchpoint for families grappling with neuroimmune disorders including all types of encephalitis, PANS, and PANDAS. We are always accepting applications for new chapter leaders worldwide!

  • Please first read over our 10 Principles and then submit your application below.
  • Chapter leaders are required to host at least one meeting per quarter and commit to leading a chapter for twelve months. Willingness to fundraise is appreciated but not required.
  • Please be as honest as possible in your application.
  • Please note that our chapters are currently on hold. Please sign up for our newsletter as we will update you when they resume.

Our chapters adhere to the following 10 principles:

  1. We provide peer-to-peer support but never provide medical advice. We do not share confidential stories with others.
  2. We share from our personal experiences with acknowledgement that no one treatment works for everyone.
  3. We acknowledge that PANS, PANDAS, and neuroimmune disorders have a very wide spectrum of severity. Treatment failure does not mean an individual does not have PANS, PANDAS, or a neuroimmune disorder.
  4. Families of individuals without abrupt onsets are welcome in our groups and will not be made to feel less than given there is no scientific evidence that sub-acute onsets represent a completely different medical disorder.
  5. PANS has no age restrictions. Adults with neuroimmune conditions and parents of adults with neuroimmune conditions are welcome in our groups.
  6. Individuals with autism can have PANS or another neuroimmune disorder just like any neurotypical person. Families of individuals with autism and a neuroimmune disorder are welcome in our groups.
  7. We do not tolerate discrimination or personal attacks.
  8. We whole-heartedly welcome new families and caregivers into the fold.
  9. We accept that the research on PANS, PANDAS, and neuroimmune disorders is in its infancy and more questions exist than answers.
  10. Above all, chapters exist so that families and caretakers have a safe space to share their experiences and embrace each other in an encouraging, warm, and non-judgmental atmosphere.

Chapter Leader Application

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