Inflammatory Brain Disorders Conference 2023

Advocating on Behalf of Individuals with
Neuroimmune and Inflammatory Brain Conditions

Patients and Familiesanna.conkey2023-03-21T17:24:17-04:00

Family Resources

Join the Community Room: Neuroimmune Membership

The Neuroimmune Community Room is a membership program available for caregivers, patients and community members seeking to understand PANS / PANDAS as well as infectious, post-infectious, and autoimmune encephalitis. Anyone can become a member, however, medical clinicians who qualify can join and access our clinician education opportunities.

Neuroimmune Community Room Members receive access to Q&A with clinicians, quarterly meeting style Q&As, CME presentations, as well as priority registration to upcoming initiatives.

Request PANS/PANDAS information be sent directly to a clinician

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2021 Guidestar Platinum Transparency seal

Platinum Transparency 2022, Candid.

Guidestar, the world’s largest source of information on nonprofit organizations has granted Neuroimmune Foundation their Platinum Seal of Approval the past four years in a row, an honor held by only 0.5% of nonprofits.

Additional Resources

The Journal of Child and Adolescent Psychopharmacology

September 2017 Edition

Stanford PANS Clinic and Research Program

The Journal of Child and Adolescent Psychopharmacology

February 2015 Edition

Cover of the book My Story About PANS/PANDAS, with a drawing of a child and their dog.

My Story About PANS/PANDAS is a heartfelt story written for kids who have PANS/PANDAS and their family, friends and educators. Wonderful addition to any classroom! Once a typical boy, Owen’s journey with PANS/PANDAS began after he was exposed to an infection that changed everything. Abruptly faced with severe anxiety, OCD, tics, and rage, Owen finds himself navigating a world full of doctors, medical tests, IVIG, and even weird smoothies. Likening his journey to a climb up a challenging hill, Owen helps the reader understand that sometimes the path is straight and easy, but sometimes you must zig-zag or find another way to the top.