PANS and PANDAS resources for patients and families

Join our private Facebook group for patients and families

Neuroimmune Foundation provides peer-to-peer support (no medical advice) for patients and families facing PANS, PANDAS, encephalitis, and related neuroimmune and inflammatory brain disorders.

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Request PANS/PANDAS information be sent directly to a clinician

(Your personal information will not be disclosed)

Support our work – with confidence!

Candid (formerly Guidestar), the world’s largest source of information on nonprofit organizations has granted Neuroimmune Foundation their Platinum Seal of Approval the past seven years in a row (2019–2025), an honor held by only 0.5% of nonprofits.

Neuroimmune Foundation is the only PANS-focused nonprofit to receive Charity Navigator‘s highest rating, 4/4 stars with a 100% rating.

Check the Neuroimmune Foundation's status at Guidestar.org
Check the Neuroimmune Foundation's status at Charity Navigator

Additional Resources

JCAP, Journal of Child and Adolescent Psychopharmacology, Developmental Psychopathology and Therapeutics.

The Journal of Child and Adolescent Psy­cho­pharma­cology

September 2017 Edition

Stanford Medicine.

Stanford PANS Clinic and Research Program

JCAP, Journal of Child and Adolescent Psychopharmacology, Developmental Psychopathology and Therapeutics.

The Journal of Child and Adolescent Psy­cho­pharma­cology

February 2015 Edition

RareShare: The Global Platform for Connecting Rare Disease Patients

 

Cover of the book My Story About PANS/PANDAS, with a drawing of a child and their dog.
My Story About PANS/PANDAS is a heartfelt story written for kids who have PANS/PANDAS and their family, friends and educators. Wonderful addition to any classroom! Once a typical boy, Owen’s journey with PANS/PANDAS began after he was exposed to an infection that changed everything. Abruptly faced with severe anxiety, OCD, tics, and rage, Owen finds himself navigating a world full of doctors, medical tests, IVIG, and even weird smoothies. Likening his journey to a climb up a challenging hill, Owen helps the reader understand that sometimes the path is straight and easy, but sometimes you must zig-zag or find another way to the top.