Advocating on behalf of individuals with
neuroimmune and inflammatory brain conditions

PATIENTS AND FAMILIESanna.conkey2023-09-19T15:02:26-04:00

PANS and PANDAS resources for patients and families

Join the Community Room: Neuroimmune Membership

The Neuroimmune Community Room is a membership program available for caregivers, patients and community members seeking to understand PANS / PANDAS as well as infectious, post-infectious, and autoimmune encephalitis. Anyone can become a member, however, medical clinicians who qualify can join and access our clinician education opportunities.

Neuroimmune Community Room Members receive access to Q&A with clinicians, quarterly meeting style Q&As, CME presentations, as well as priority registration to upcoming initiatives.

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Additional Resources

The Journal of Child and Adolescent Psychopharmacology

September 2017 Edition

Stanford PANS Clinic and Research Program

The Journal of Child and Adolescent Psychopharmacology

February 2015 Edition

RareShare: The Global Platform for Connecting Rare Disease Patients

Cover of the book My Story About PANS/PANDAS, with a drawing of a child and their dog.

My Story About PANS/PANDAS is a heartfelt story written for kids who have PANS/PANDAS and their family, friends and educators. Wonderful addition to any classroom! Once a typical boy, Owen’s journey with PANS/PANDAS began after he was exposed to an infection that changed everything. Abruptly faced with severe anxiety, OCD, tics, and rage, Owen finds himself navigating a world full of doctors, medical tests, IVIG, and even weird smoothies. Likening his journey to a climb up a challenging hill, Owen helps the reader understand that sometimes the path is straight and easy, but sometimes you must zig-zag or find another way to the top.