When I think of the pain I’ve watched countless families endure over the years that led me to found Neuroimmune in the first place, and think of the faces of the beautiful, burdened children and young adults that have graced my inbox, and the desperate pleas from parents, I feel great sadness for what our community has collectively endured, but also tremendous hope for the future given what we‘ve been able to accomplish together in the past three years.
The exponential growth in medical clinicians attending our educational events on PANS/PANDAS has exceeded our expectations and hopes. We know that for each clinician who becomes educated on PANS/PANDAS, dozens of patients‘ lives will be positively impacted. Our ability to offer and market these programs is due entirely to the support from our community. We have made great strides in the past year that would not have been possible without the outpouring of support we’ve received from you.
Well over 1200 medical clinicians alone registered for this conference. Stanford, UCSF, Columbia, and Yale accounted for the majority of our speakers. AAP Chapters, Medical Societies, and medical colleges in multiple states have endorsed and shared the conference and our CME. Not once in planning, marketing, or engaging anyone did I hear the word “controversial.” In fact, I did not hear anything but resounding affirmation that this information is not only worthy of being shared, but that physicians are truly excited to have the opportunity to become educated on these topics.
Gratitude is owed to many – from the very first advocates of PANS/PANDAS who laid the earliest groundwork, to the researchers and clinicians who faced criticism for daring to think outside of the box, to the parents wrecked with exhaustion who still took the time to reach out to their clinicians and share our educational events, to our biggest donors who have made much of our work possible, and to our littlest donors who have given what they were able to despite being stretched so thin. There is much more work yet to be done, but there is light at the end of this tunnel. To each of you who have played a part in bringing all of our families a little closer to that light, thank you. You have made a tremendous difference and we appreciate you.
Executive Director and Founder
Click on the image to view the PDF of our Impact Report 2021