Join The Community Room

Memberships for patients and families

Become a Member to Access Exclusive Recordings and Live Events

Upcoming Live Events

These live events are open to members only.

Jennifer Frankovich, MD

Clinical Associate Professor, Stanford

Richard Frye, MD, PhD

Rossignol Medical Center

Anna Conkey

Neuroimmune Foundation, Executive Director and Founder

Join us for a live, face to face, hour long Q&A for members with Dr. Frankovich from Stanford PANS Clinic and Richard Frye, MD, PhD from Rossignol Medical Center hosted by Neuroimmune Foundation director, Anna Conkey. This live event (no recording) will be April 4, 2023 at 4:00 pm PT, 5:00 MT, 6:00 CT, 7:00 ET. Parents may submit their questions via email at You may join us on camera if you wish. Please note when you submit your question if you’d like to ask it live or have us ask anonymously. If you do not state your preference, we will ask the question anonymously for you. Please note that we are not recording this to protect the privacy of members, however, please be mindful of the way you phrase questions on the Q&A so as to only divulge information you feel comfortable sharing with the group. Please note that panelists cannot give medical advice. By participating you agree you understand you are not receiving medical advice but rather insight as to how patients in their cohort have responded to various treatments. Please do *not* ask patient specific questions. For instance: “How do you decide which antibiotic to use?” is fine but “What antibiotic would you suggest for an eight year old with ASO titers of 738 and positive Mycoplasma IgM?” would not be. Failure to protect the privacy of other group members will result in revocation of membership. Please do not share any identifying details of any other parent’s questions with anyone outside the Q&A. Thank you for your cooperation in creating a safe space for families.

Webinars Available Exclusively to Members

Eileen Devine

Eileen Devine, LCSW

Recognizing and Addressing Trauma in the Sibling Experience

Dr. Emily Severance

Emily Severance, PhD

Autoimmune Phenotypes in Psychiatric Disorders

Dr. Lawrence Steinman

Lawrence Steinman, MD

Does Molecular Mimicry Explain Epidemiology Linking EBV & MS…

Dr. Michael Wilson

Michael Wilson, MD

Autoimmune and Infectious Encephalitis

Dr. Madeline Cunningham

Madeleine Cunningham, PhD

Update on The Cunningham Panel and Related Research

Dr. Shannon Delaney

Shannon Delaney, MD

Neuropsychiatric Illness Associated with Lyme and Tick-borne Illnesses

Dr. Richard Frye

Richard Frye, MD

Q&A with Pediatric Neurologist, Dr. Richard Frye

Tina Motley

Tina Motley

The Science of EMDR


Beth Maloney

Beth Maloney, Esq

Protecting Your Child: Legal Issues Arising for PANS/PANDAS Families …

Dr. Erica Guetzlaff

Dr. Erica Guetzlaff

Understanding the medications used in PANS/PANDAS 

Dr. James Adams

James Adams, PhD

Overview of Microbiota Transplant for Autism Studies

Dr. Robert Yolken

Robert Yolken, MD

Neuropsychiatric Consequences of Infections: Focus on SARS-CoV-2

Dr. Shannon Delaney

Shannon Delaney, MD

Illness Associated with Lyme and Tick-borne Illness

Dr. Sarosh Irani

Sarosh Irani, FRCP, DPhil…

Clinical Features and Immunology Underlying Autoantibody…

Dr. Naresha Saligrama

Naresha Saligrama, PhD

T Cells and Neurodegeneration


Dr. Samuel Pleasure

Sam Pleasure, MD, PhD

Neuropsychiatric Presentation in Pediatric COVID-19 Patients…

Dr. Richard Frye

Richard Frye, MD, PhD

Metabolic and Mitochondrial Considerations in Neuropsychiatric…

Dr. Chris Ikonomidou

Chris Ikonomidou, MD, PhD

A Neurologist’s Perspective on PANS: Case Studies

Dr. Wei Zhao

Wei Zhao, MD, PhD

Plasmapheresis in Treatment of PANS

Dr. Christopher Bartley

Christopher Bartley, MD, PhD

Autoantibody Discovery in Psychotic Spectrum Disorders

Dr. Jennifer Frankovich

Jennifer Frankovich, MD

Rheumatology and Psychiatry: What We Can Learn From Overlapping Conditions

Dr. Christopher Pittenger

Chris Pittenger, MD, PhD

Antibodies in Children with PANDAS Bind to And Inhibit Specific Interneurons…

Dr. Margo Thienemann

Margo Thienemann MD

PTSD in Parents of Children With PANS

Dr. Cheri Standing

Cheryl Standing, MD

PANS Cases Through The Eyes of a Pediatrician

Dr. Erin Masterson

Erin Masterson, PhD MPH

Preliminary Findings from the International PANS Registry…

Dr. Theresa Willett

Theresa Willett, MD, PhD

Clues from the Clinical Exam


Dr. Ruy Carrasco

Ruy Carrasco, MD

Clinical Work up and Treatment of Rheumatological Diseases That…

Dr. Andrew Baumel

Andrew Baumel, MD

A Pediatrician’s Perspective on Treating Mild to Moderate PANS

Dr. Elizabeth Mellins

Elizabeth Mellins, MD

Monocytes in PANS

Dr. Cynthia Kapphahn

Cynthia Kapphahn, MD

Disordered Eating In PANS

Dr. Sean Pittock

Sean Pittock, MD

GAD65 Neurological Autoimmunity

Dr. Jill Hollenback

Jill Hollenbach, PhD, MPH

Immunogenetic Variation in PANS and Neuroinflammatory Disease

Dr. Dritan Agalliu

Dritan Agalliu, PhD

The Role of Adaptive Immunity and Genetic Risk Factors in Vascular…

Dr. Hayley Gans

Hayley Gans, MD

The Link Between Infectious Diseases and Neuroimmune Disorders

Dr. Cynthia Wang

Cynthia Wang, MD

Neuropsychiatric Symptoms in Pediatric Multiple Sclerosis

Dr. Harumi Jyonouchi

Harumi Jyonouchi, MD

A Possible Role of Immune Mediated Inflammation in Autism Spectrum…

Dr. Theresa Willett

Theresa Willett, MD, PhD

PANS/PANDAS For the Busy Primary Care Provider

digital artistic brain with lights

Samuel Pleasure, MD, PhD and Michael Wilson, MD

Infectious and Autoimmune Causes of Encephalitis

digital artistic brain with lights

Margo Thienemann, MD and
Richard Frye, MD, PhD

PANS and PANDAS: A Review of the Research and Current Treatments

Front of awareness card with a digital, artistic drawing of a brain, and the text, "My child has an inflammatory brain condition that can present with challenging behavioral symptoms that are not in his/her control. Thank you for your patience and understanding. It is appreciated."
Back of awareness card, with the logo, The Foundation for Children with Neuroimmune Disorders, and

Members can request these cards be shipped to them free of charge.

What are the benefits of joining The Community Room and purchasing Neuroimmune membership?

  • Please see above for all the exciting webinars and opportunities you can access as a member!

How much does membership cost? What are the terms and conditions?

  • Annual membership is offered at $11 a month. Cancellation prior to 12 months is permitted, however you will be responsible for the remainder of the $132 annual membership fee if you would like to cancel in advance. By submitting your first payment and agreeing to an account, you are agreeing to these terms.
  • Community Membership Terms and Conditions
    There are no refunds for any reason. Cancellation prior to 12 months is permitted, however you will be responsible for the remainder of the $132 annual membership fee if you would like to cancel in advance. Once you have completed one year as a member, you may cancel at any time without additional charges. By submitting your first payment and agreeing to an account, you are agreeing to these terms. Ongoing monthly charges will occur until you cancel them.
  • While membership entitles you to view or listen to certain webinars or meetings, it does not guarantee that your question will be asked. In all cases, the opinions expressed by the expert hosts should not be interpreted as medical advice pertaining to a specific child’s case, but rather simply reflect the experience of these expert clinicians in treating similar cases or encountering similar situations in the past. Each individual’s case is unique and the expert hosts do not have the ability to examine the child nor confirm the accuracy of the clinical information, thus cannot and will not make specific treatment recommendations on any child’s case but instead provide more general information based upon clinical experience.
  • Any type of bullying or harassment on forums, Q&As, social media, or email will not be tolerated under any circumstances and will lead to immediate revocation of one’s membership as will failure to respect the privacy of other children/families (including but not limited to sharing details of private questions asked on Q&As and in forums). Similarly, allowing friends/family to access one’s membership account or any online meeting links will result in revocation of membership without refund.
  • We value your thoughts and contributions and will periodically ask for your feedback on our initiatives and how we can best serve our community. Please note that our membership structure does not provide voting opportunities for members. While membership provides access to watch the CME recordings, medical professionals who are not entitled to free CME certification.